Ehlers-Danlos syndrome

Categories: uncategorized

Date: 16 August 2011 20:16:05

My friend has Type 3 of this condition. Hypermobility syndrome is a classic symptom displayed by those who have this type. There is a national society for it in America. Here, it's wikipedia only and doctors don't seem to know anything about this condition. My friend is lucky in the sense that she has a physio who has researched and paid for resources out of her own money, to be able to treat the condition correctly. That is working beyond the call of duty. My friend is wheelchair bound and needs help from carers, family and of course friends. It would be good if the experts knew about the condition here, if it is known about else where in the world. Though there are other conditions that are more well known in America, like dwarfism, for example, and so all the conventions and conferences happen there.