Categories: uncategorized
Date: 02 October 2005 09:59:30
Well, I'm wearing a different bracelet this morning. The Make Poverty History one is about, somewhere, but I spent yesterday afternoon under the auspices of the NeuroFibromatosis Association, mostly listening to some distinguished medical people. It was strange. Listening to professionals talking dispassionately (not fair - I was impressed with their passion - just that they have a different perspective) ...
When you meet with a doctor, the focus tends to be on your own circumstances and condition. But when the doctor talks to a group about your condition, and you happen to be listening, then you have this experience of occasionally fitting your own individual case into the generality of what is being said. Something affects one in a thousand people, but if you happen to be that one, then you are one of one.
A bit of a roller coaster. Some risks have been reassessed, but, on the other hand, treatments may be on the horizon.
And, by the way, I am not the one in a thousand (or more like one in two to three thousand), but I'm married to one, and father of another.